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However, the society urges more study of pot possibilities. The families using Charlotte Web, as well as the brothers who grow it, say they want the drug rigorously tested, and their efforts to ensure its purity have won them praise from skeptics like Wolk.
Her father, Matt, a former Green Beret who took a job as a contractor working in Afghanistan, started looking online for ways to help his daughter and thought they should give pot a try. But there was a danger: Marijuana psychoactive ingredient, THC, can trigger seizures.
For many, Charlotte story was something they couldn ignore.
The drug also contains another chemical known as CBD that may have seizure fighting properties. In October, the Food and Drug Administration approved testing a British pharmaceutical firm marijuana derived drug that is CBD based and has all its THC removed.
Stanley went to the Figis house with reservations about giving pot to a child.
Mirazabegian has begun to distribute the strain to 25 families and has a waitlist of 400. It includes, he said, families willing to move from Japan and the Philippines.
Still, more than 100 families have relocated since Charlotte story first began spreading last summer, according to Figi and her husband and the five brothers who grow the drug and sell it at cost through a nonprofit. The relocated families have formed a close knit group in Colorado Springs, the law and order town where the dispensary that sells the drug is located. They meet for lunch, support sessions and hikes.
the most hope lots of us have ever had, said Holli Brown, whose 9 year old daughter, Sydni, began speaking in sentences and laughing since moving to Colorado from Kansas City and taking the marijuana strain.
Charlotte takes the medication twice a day. year ago, she could only say one word, her father said. she says complete sentences. recovery of Charlotte and other kids Omega Seamaster Aqua Terra Ladies has inspired the Figis and others to travel the country, pushing for medical marijuana laws or statutes that would allow high CBD, low THC pot strains.
Few dispensaries stock CBD heavy weed that doesn get you high. Then Paige Figi found Joel Stanley.
One of 11 siblings raised by a single mother and their grandmother in Oklahoma, Stanley and four of his brothers had found themselves in the medical marijuana business after moving to Colorado. Almost as an experiment, they bred a low THC, high CBD plant after hearing it could fight tumors.
Colorado pot helps kids with seizures
Amy Brooks Kayal, vice president of the American Epilepsy Society, warned that a few miraculous stories may not mean anything epileptic seizures come and go for no apparent reason and scientists do not know what sort of damage Charlotte Web could be doing to young brains.
don have any peer reviewed, published literature to support it, Dr. Larry Wolk, the state health department chief medical officer, said of Charlotte Web.
COLORADO SPRINGS, Colo. The doctors were out of ideas to help 5 year old Charlotte Figi.
she had done her homework, Stanley said of Paige Figi. wasn a pot activist or a hippy, just a conservative mom.
Charlotte Web and an influx of families with seizure stricken children to Colorado from states that ban the drug.
we have that information, as physicians, we can follow our first creed, which is do no harm, she said, suggesting that parents relocate so their children can get treated at one of Omega Seamaster James Bond Casino Royale
The CBD is extracted by a chemist who once worked for drug giant Pfizer, mixed with olive oil so it can be ingested through the mouth or the feeding tube that many sufferers from childhood epilepsy use, then sent to a third party lab to test Omega Seamaster Professional Planet Ocean
Suffering from a rare genetic disorder, she had as many as 300 grand mal seizures a week, used a wheelchair, went into repeated cardiac arrest and could barely speak. As a last resort, her mother began calling medical marijuana shops.
Charlotte is a twin, but her sister, Chase, doesn have Dravet syndrome, which kills kids before they reach adulthood.
Ray Mirazabegian, an optician in Glendale, Calif., brought Charlotte Web to his state, where medical marijuana is legal. He convinced the Stanley brothers to give him some seeds he could use to treat his 9 year old daughter Emily, who spent her days slumped on the couch. Now, she running, jumping and talking. Mirazabegian is cloning the Charlotte Web seeds and has opened the California branch of the Stanleys foundation.
Donald Burger recently urged a New York state legislative panel to legalize medical marijuana while his wife, Aileen, was in the family new rental house in Colorado Springs, giving Charlotte Web to their daughter Elizabeth, 4. The family only relocated to Colorado after neurologists told them Elizabeth best hope brain surgery could only stop some of her seizures.
In early 2012, it seemed Charlotte would be added to that grim roster. Her vital signs flat lined three times, leading her parents to begin preparing for her death. They even signed an order for doctors not to take heroic measures to save her life again should she go into cardiac arrest.
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can walk, talk; she ate chili in the car, her mother, Paige Figi, said as her dark haired daughter strolled through a cavernous greenhouse full of marijuana plants that will later be broken down into their anti seizure components and mixed with olive oil so patients can consume them. I fight for whoever wants this. warn there is no proof that Charlotte Web is effective, or even safe. In one case, a doctor said, parents were told they could replicate the strain by cooking marijuana in butter. Their child went into heavy seizures.
Two years later, Charlotte is largely seizure free and able to walk, talk and feed herself after taking oil infused with a special pot strain. Her recovery has inspired both a name for the strain of marijuana she takes that is bred not to make users high Omega Brown Leather Strap
the nation 28 top tier pediatric epilepsy centers rather than move to Colorado.
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